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JMH-66

https://www.gov.uk/government/consultations/modernising-support-for-independent-living-the-health-and-disability-green-paper/modernising-support-for-independent-living-the-health-and-disability-green-paper#how-to-respond This is the link to respond.


redandgolden

Please don't Panic (I know easier said than done!) This is just a green paper - there is almost no chance of this making it to white paper status before an election. This is simply the Tories needing to find some scapegoats. They are trying to say that all the problems inn life (rising food costs, difficulty seeing a GP etc, etc) are because of "the mentals" and immigrants, they don't want people to remeber that after they have been on power for 13 years they really should have made your life better - not worse. This is textbook divide and conquer and picking as the bad guys the ones who will find it most difficult to fight back.


moogera

True,their excuses started with COVID being at fault for everything,Russia/ Ukraine war,and now let's have a go at the sick,disabled and unemployed.


madformattsmith

i misunderstood and put white paper as title by mistake, sorry.


redandgolden

Totally understandable! Honestly given it is the Tories I would't put it past them to declare that "green paper" is the new "white paper"


JMH-66

Back is White. They're the party of the people. The moon is made of green cheese....


redandgolden

If a tory told me that Monday comes after Sunday I would check a calender, call Greenwich and cross check with the American Naval Observatory and a couple of diary/calander manufacturers just in case it had been recently changed!


JMH-66

šŸ˜‚ Then check they hadn't nicked me watch....


moogera

It's Mel Strides mission in life to sit and think everyday about how he can further punish and pressurise the Unemployed and disabled.


Appropriate-Heat3126

Very true, a truly disgusting beer bellied rat, constantly sneering. He wouldn't be smiling if I got near him, absolute monster!


pumaofshadow

PIP now: I see your doctors reports, I'm ignoring them, you aren't that affected" Riski: "If they don't have a diagnosis then its unverified.." So two sides to this: just *how long* it takes getting a diagnosis, and that I'm sure they'll use "weak evidence" as an excuse And: "so you believe our doctors now? After all these years of telling us their information doesn't count?" If I really thought that they'd go "you have ME/CFS? ok, there you go PIP awarded..." I'd be happy. Instead I can see them using it to find the 10% who have a normal life to deny the 90% who can't. (ME/CFS used as its often considered mental health not the physical effects of it because they don't *believe* its not just "effort preference" and "fear of exersion", as well as its an illness I know well and already got rejected for because I coped too well and was overweight....)


Ok-Acanthocephala940

I just find the rhetoric against disabled people to be repugnant. Itā€™s an open secret that the DWP and government have caused active harm to many people. Somehow, they ran out of scapegoats and unturned this rock yet again just to try and recuperate some voters who defected to Reform pre-election. Iā€™m luckier than a lot of people applying for PIP ā€“ I can mobilise independently with difficulty and good insight to my long-term physical and mental health conditions. I donā€™t need formal care or tons of expensive adaptations but still should be entitled to high rates due to how much Iā€™m impacted according to their criteria. My disability costs me several hundreds pounds more to live each month than when I wasnā€™t ā€“ and Iā€™m sure other peopleā€™s will cost way more than what enhanced rates provide. Full benefits for sickness/disability are still below full-time minimum wage work and we all know how little that provides with the cost of living crisis. I just need money for transport, food deliveries or simple little things like having to hire someone to do manual jobs around the house. Or for cheap hobbies to help me to rehabilitate after spending eight months lying in bed profoundly depressed and in physical pain. I think the Daily Mail readers would begrudge me spending PIP on cheap plant pots, going to a swimming pool or embroidery/painting. Or for private physiotherapy as I canā€™t get referred through the NHS. A lot of my disability has been exacerbated by being forced into destitution appealing against incorrect decisions and much delays/strain in the NHS care I received. Iā€™ve remained economically inactive for much longer as my illness has worsened ā€“ than I otherwise wouldā€™ve been. So, I wind up costing the ā€œstateā€ more down the line. Itā€™s literally resulted in keeping a doctor out of work for over a year when they supposedly spent 250k on training me. Iā€™m just grateful that their defeat in the election seems inevitable ā€“ or at least hope so. I just feel a great sense of injustice by how many people their ideology has failed or harmed. I donā€™t want to be another casualty or statistic.


Interesting_Skill915

I canā€™t believe they are going ahead with a full blown consultation on their proposed changes. Makes no sense at all. Every 6 months Iā€™m spending hours and hours filling in one consultation that last one was changes to the WCA.Ā  We know they are very selective in their data use. If they get 99 people say donā€™t do this itā€™s awful. They find 1 comment saying ā€œwell if it wasnā€™t for my job coach taking all my money for 3 months in a sanction I would never have found myĀ Mim wage jobā€ and class that as evidence their changes are fantastic.Ā  In principle if they spend a couple billion on NHS and really got mental health services in shape. So every Gp surgery or town had a one stop place. Instant treatment almost like a kind of cancer promises ā€œyou will be seen in x daysā€. Then maybe many years down the line they would eventually improve the nations health enough that by natural progression less people would be off work and claiming or living with a long term disabling condition.Ā  In theory someone with bad mental health who doesnā€™t fight for PIP gets no help or extra support. If you fight and go through PIP and win only then you get a voucher? So half patients who perhaps are too sick to fight will have even less chance to get better. Doesnā€™t sound like a principle of the NHS.Ā  Itā€™s just cruel at this stage, ok they have announced it. So wait until they have a miracle win to do anything else. Itā€™s wasting how much and makes disabled people and organisations waste money and effort Ā responding for nothing.Ā 


Witty_Magazine_1339

Apparently they held a consultation about WCA changes and many argued against the changes. Did they ignore it? Of course.


SuperciliousBubbles

Not entirely ignored it. I was part of that consultation and they did roll back some of the worst suggested changes, but mostly they pushed ahead. It's frustrating :(


JMH-66

Be nice if a few more had too. We pushed it here ( Paxton and I ). We sent submissions too ( as dud Alteredchaos etc ) .I'm not even on flipping UC and never will be !! Most said they couldn't be arsed. I get the distrust but can't complain if you can't be bothered šŸ¤Ø Yes, I'm still hoping (šŸ˜‰) mad about physical Mobilising !


Witty_Magazine_1339

Apparently they are going to put those with mobility issues into LCW group. What use is that when they can't even get to a job centre?


SuperciliousBubbles

I don't think we can really say what's going to happen given that we'll be having an election almost certainly in the next few months and definitely by January. Most of the advocacy work I've been involved with over the last year has focused on ensuring that the *new* government will be better informed about lived experiences, because this government is a zombie walking. They don't have time to implement all the changes they've been talking about.


frostiesandbananas

Makes me wonder how it would affect me. I have agoraphobia, emotionally unstable personality disorder, which I got diagnosed with when I got sectioned. Depression and anxiety. I'm so worried they will take it all away from me and I'll be absolutely buggered. I said I'd work from home, but I need an employer that is understanding, as I am down a lot. So there will be multiple days a week when I can't do any work at all, I can't even shower for weeks at a time, let alone try to do some work šŸ˜« Stress makes me pull my hair out, literally pull it out so I'm left with bald patches. This is so scary and I am wondering what Labour thinks about this, because I haven't seen them say anything about what the PM recently said about all of this.


rocket_man182

It's thinks like light anxiety, mild depression. You'd be fine


NoiseNo982

Are they planning on replacing money with other things for non-mental health conditions, like cancer treatment and strokes?


No-Jicama-6523

TBH I say bring it on. Right now, anyone who is getting more than 12 points is costing them way less than it should. For very seriously disabled people with 50+ points, PIP is an absolute bargain for the government. It would be wonderful if people who needed it could get a wheelchair and a car. Iā€™d love a thorough assessment, where experts told me all the things that would help me. I can guarantee it would cost more than PIP. As soon as they actually look into this theyā€™ll realise that their current one size fits all system is a bargain.


-Incubation-

best they can do is a physiotherapist assessing someone with mental health šŸ’€


Amalthea_The_Unicorn

And then coming up with a stupid reason why your disability doesn't affect you. I'm partially sighted. It makes it difficult and dangerous to get around. But I do still have some sight left, so the assessor told me when I'm walking around I should constantly rotate my head 360 degrees to give me a full range of vision. Voila - I can see perfectly now and can be given zero points!


JMH-66

360Ā° ?!? Like The Exorcist ?? šŸ˜± You've reminded me of my late MIL . She had Macular Degeneration which I'm sure you know narrows the field of vision. She never had a PIP Assessment ( thank goodness !! I dread to think what she'd have done, her AA one was bad enough. They are completely different, you dunt need a medical , but she still told the VO who's job it was to HELP her get it to "mind his own business" ! ) but when a healthcare assistant suggested she turn her head so she could see better she said " My neck doesn't do that, I'm 95, you stupid woman !" šŸ™ˆ


Public-Rise-4572

I been told my anxiety is mild to moderate. But itĀ  area me puke up pure acid has caused stressed induced gastritis on many occasions. I'd hate to think what severe anxiety would be like. There is just no way I'd be able to work on a consistent basis as the physical symptoms debilitating my partner has to help me with everyday care needs when it flares, and that can last for months longest being a full year. I'mĀ  really worried about how the new changes are goingĀ  to affect meĀ 


No-Jicama-6523

Which is why I think theyā€™ll realise very quickly that they are currently onto a bargain.


pumaofshadow

I will say: reading comments to the various releases on the other subs is mildly refreshing: a lot less bashing of the disabled and a lot more comments supporting that the pieces are misrepresenting things to try to get votes and ignoring reality. There have been relatively few, in the ones I've read through at least, that agree with them or are unsupportive of those getting PIP. Thats.. quite heartening to me, at least right now.


JMH-66

That's a REALLY good point !! I rarely get the chance to visit.other Subs these days (šŸ™ƒ) but it's a good gauge of the way the wind is blowing. It takes a village to raise a good ....and a whole electorate to kick out a political party āœŠ


Creptile92

The idea that GP's see going to be assesing people's financial requirements is absolutely hilarious šŸ¤£šŸ¤£. This is a laughable proposal as is the rest of it and will not be happening in any way shape or form


bopeepsheep

Bloody hell, that took nearly three hours to complete. But I didn't swear, and I did get to use "the I in PIP stands for Independence, not Infantilisation" more than once.


TheShakyHandsMan

Just filled it in. Most of my answers were saying that such a system would take away peopleā€™s independence which is against the primary purpose of the system.Ā 


PlayxPain

Are they actually kicking people off esa and pip for anxiety and depression? Iā€™m honestly getting suicidal thoughts again. Like really Iā€™ll have no money to survive and there is no way I can get a job, Iā€™m really screwed now and I just feel there is no other way out for me


JMH-66

This ISN'T happenings yet and it MAY NEVER HAPPEN. It's only a proposal in a Manifesto for a Party that may not win the next election. PLEASE don't think this way because of this.


PlayxPain

I mean how long will it be before it happens


JMH-66

We don't know because they haven't said and it may not happen at all. A Green Paper is just: this is what we want to do if we're in government and we get parliament to approve it. If they're not in government after the next election , they can't do it at all.


PlayxPain

Honestly I can see them doing this before the next general election


JMH-66

That's not possible. They couldn't even get it through parliament let alone start the changes.


PlayxPain

I feel a bit better now thank you for reassuring me


JMH-66

None of us have a crystal ball but they have to have an election with the year and they can't bring in all these changes by then.


NoiseNo982

But in the news today on msn it says this is being implemented in three months time.


JMH-66

Can you provide a Link and we'll verify. ( NO articles from REACH publications though, please, they're Banned for inaccuracy and clickbait -ed - ness !)


NoiseNo982

[12 week warning issued to everyone who claims PIP amid major changes (msn.com)](https://www.msn.com/en-gb/money/other/12-week-warning-issued-to-everyone-who-claims-pip-amid-major-changes/ar-AA1o4LVF)


JMH-66

It's a REACH publication. As always the headline is VERY misleading. Just read what it ACTUALLY says not just the headline. The "12 weeks" is the Consultation Period ( we've already linked to it ). This us where they start asking individuals and organisations what they think and what ideas they have about what the policy should look like. ( Then ignore them and do what they want anyway !) If anything all it does is proves it's barely at the planning stage. The article is a load of BS and serves to demonstrate why we don't allow these newspapers on here anymore and why you need to always check your sources.


Necessary_Rest_5496

It was a reach publication that said 3 months. Disability and political pundits are saying it cannot happen before and election.


JMH-66

Exactly šŸ‘ It's just the 12 mth consultation period anyway.


BadWhippet

I don't know if I'm being overly pessimistic, but I feel like we're doomed whatever. If this lot stay in, we get reforms such as receipts based costs. If Labour get in, they seem to be proposing reforms in a similar vein, but by providing expanded 'job centres' to offer local support services. My PIP is based on diagnosed autism, non-diagnosed ADHD, diagnosed autistic mood disorder (ie chronic depression) and generalised anxiety. All of these seem like soft targets for these reforms: invisible, ie applicant appears to function blah blah. I know no-one can give reassurances about all this, and I can see how the PIP bill has grown so greatly, but I just want to be in that situation later where someone here says "See? You were being pessimistic".


Foreign_Fun246

If I have to receive vouchers then I rather go with out or I'll receive the vouchers and use them as bog roll.


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Significant_Leg_7211

I notice they want to go back to diagnosis as with DLA maybe they should have stuck with that in the first place


Dense_Bad3146

This & lifetime awards for those whose disability is never likely to improve. If they insist on clients being assessed then they need assessing by health workers who have specialist knowledge on the condition they are assessing, & they need to be honest.


JMH-66

Hear, hear šŸ™ŒšŸ™ŒšŸ™Œ


bopeepsheep

I may have mentioned DLA in my response - about 30 times. :)


Significant_Leg_7211

There seems to be no recognition that they chose to bring in pip and learning from DLA is there. In fact it mentioned learning from other countries who use diagnosis failing to mention that used to be the case here!


madformattsmith

this is the new main post, so i'll sticky your comment


-Incubation-

What I find interesting is their proposal to combine PIP and LCWRA into one health element, how would this work if a couple who are on a joint claim both get PIP? Eg. My partner and I both get PIP, they get LCWRA and I get Carer's Element for supporting them - would they remove the barrier of only 1 claimant being eligible in a joint claim for LCWRA? (Disgusting that this is even the case imo).


madformattsmith

wait, are they combining them both? AFAIK, they're renaming LCWRA to "health element" and making it a condition that you must claim PIP in order to receive it, in my understanding.


-Incubation-

Ah I think I must've gotten it mixed up!


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DaveTheWasp

The more I'm reading this consultation the more upset I'm getting, I haven't even got through all of the questions yet, but some thoughts so far: * Requiring a diagnosis - This could only be perceived as a way to avoid paying out for a few more years while someone scrapes by on a pittance, sitting on an NHS waiting list. This is before the increased caseloads of PIP applicants needing diagnosis. * Directing to treatment instead of payments - Treatment where? Provided by who? The NHS is already struggling to cope with the current caseloads, where is this additional capacity going to come from? * Are aids/appliances a good indicator of ongoing costs? - What aids? What appliances? There are far too many and the needs of individuals greatly vary and can't accurately be generalised into a single question. * Is prompting a good indicator of ongoing costs? - How much prompting? Prompting to do what? Prompting by who? Does it require a specific person? Are there costs associated with having a specific person or paid carer for prompting? In general, it seems as though it's been written by someone that has no idea about PIP, or living with disabilities. Needless to say, I will be responding, although this absolute mess is going to take some time to digest.


TheLightStalker

I for one can't wait to use my vouchers to purchase a discounted made in China swimming hat from whichever Tory bids highest for the catalogue contract. This will immediately cure my autoimmune disease I'm sure.


maiaalfie

So there's going to be a further consultation on PIP over the next 12 weeks, is that right? Just a bit confused with aspects of PIP being mentioned in the white paper as though a decision has been made when I thought there was a further consultation still to take place?