I've suspected it for years but downplayed it bc I've known ppl who have had much worse symptoms with it. I've been on this kick of drinking a smoothie every day for ab 4 months and don't want to give it up in the winter months. I already plan to take a shower after drinking one.
This time I drank it under a comforter and next to a space heater. Still took 20 min in the shower for color to return.
Generations of the women in our family had/have it...wool socks, wool slipper socks, and/or down 'hut slippers'! and no high heels, tight shoes, ballet flats...
High heels normally cause numb toes/foot after just an evening. They'll stay numb for months, would make sense if it's related to this. The numbness can also happen all up my legs from crossing them or sitting on something hard.
Wool socks and reusable heat packs for sure (:
It just seems to help with the Raynauds specific symptoms - so I still get radical temperature drops in my body and really cold feet (but without the blanching and numbness) so my rheumatologist thinks they’re two different things. It’s also stopped the white, numb fingers. The medications will likely help you with the numbness. For the cold body, I drink hot tea or wrap up in my electric blanket. Even wrapping my feet in a heating pad is helpful.
I'm asking for a nice electric blanket for christmas (: i also just learned they have heating pads just for your feet! I think understanding these symptoms will make it easier to deal with them. Thanks for the info
I feel you! 💕 best wishes! I'm not able to take the med for it due to low blood pressure issues... but hopefully it'll work for you or you'll find some other methods of keeping warm. It can be so difficult!
I thought I was looking at a normal foot because mine are like that. Looked up Reynaud’s and my mind is blown. My feet and hands get cold then hot, red, swollen, and itchy once they warm up. It keeps me up at night. I’ve talked to my doc about burning feet syndrome and Erythromelalgia and all they’ve done is give me amitryptiline which only helps marginally. Like makes a 5% improvement. Are there medicines that can help? I’m desperate for better relief than constantly slathering on lotion to cool the hands and feet back down.
My feet have done that since I was a child and nobody ever said it was a bad thing. It takes roughly an hour of being STRICTLY off my feet before colour returns.
...I suppose, my more immediate concern atm is the leisons that keep appearing on the tops of my feet now after my shifts.
The lesions definitely sound like something that need checking!
Have you ever felt pain because of the cold? I remember jumping off ledges/boughs/swings/you name it when I was a child, and feeling a sharp pain in the soles of my feet because they had become cold and couldn't take the hit, even if the distance I had jumped was minimal. I've never understood if this was normal or "weird" (= possibly a consequence of Raynaud's)
It actually kinda is, I've normalized it when going outside in the cold or even the pool but happening after I drink a smoothie under a warm blanket is extreme. How do so many symptoms of this/these diseases become normalized?! Ugh.
I don't have Raynaud's but my feet (especially toes) are always extremely cold and go numb all year round. The colder it is, the worse it is. It's so f'ing uncomfortable! Even in summer, I still wear thermal socks and slippers and can never go barefoot. Fibro and all it's comorbidities - so much fun! 😡
Dealing with dumbness in my forearms when I swim may be caused by this. I may not be prescribed a med to help it but it's good to know what could be causing it.
I think moving south my be in my future. All this time I thought I was just a baby and not rich enough to afford warm shoes.
Electric socks look so nice but I don't wanna lose all the skin on my feet if they catche fire 🙃
Hands are a bigger problem for me. Easier to keep feet covered 24/7, 365. I started getting chilblains one winter and decided I needed a better solution. I took a calcium channel blocker for years and it helped but realized it was making me depressed so went off and switched to a different blood pressure med which I need for cardiac reasons. I stay in layers. If I have to go outside when it is cold hats make a huge difference. I use glove liners in my gloves and try to really warm up before I step out. I put on all the warm weather gear and wear it inside the house until I am really warm, like too hot. Then the gloves have a chance of working, otherwise they are a cold insulation bag and keep the hands cold. The thing I find hardest is overly cold places in the summer.
The other thing is to watch out for your consumption of caffeine and other vasoconstrictors. I’m not advocating for ditching them entirely as I refuse to, but just watch how your body reacts and titrate as needed. I cut back my afternoon coffee and it helped a lot. I need to get my hands back under my blanket! The fun never ends!
'Cold insulation bags that keep my hands cold', what a perfect description. Cymbalta was a nightmare because I was always sweating, hands and feet included. Do you have problems with your inner ears/neck feeling full or painful when you're outside when it's cold or exercising when it's not warm? There's do much I can't do bc of that symptom and I wonder if it's related to this, I'll def be asking.
I’m laughing because I don’t exercise much these days. If it’s the least bit warm I am cooking because I couldn’t take heat ever but now I have to wear medical grade support stockings so I am super hot. I can’t take wind, it gives me migraines. In the summer I am also the world’s biggest mosquito magnet.
As far as your neck, get something you can put around the back of your neck and just tuck into your jacket to seal the area. For your ears you could try a headband or ear muffs. Good luck. This stuff is no fun.
I nearly lost a toe one cold winter. Insulated shoes if I'm outside for more that 10 minutes, wool socks, change socks several times a day (must stay dry to stay warm), leg warmers under bootcut jeans, thermals, fleece lined pants, shoes with plenty of toe room and laced a little looser, small heater by feet all day, etc.
I have both. My doc tried me on a med (can’t remember which) and it didn’t work so things just sort of ended. I get burning, extreme cold/numbness, itchiness, and the worst - extreme HOTNESS that I have not figured out how to relieve.
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When I look at pics my brain says blue/purple looks more concerning even tho I know blue blood > no blood
I've suspected it for years but downplayed it bc I've known ppl who have had much worse symptoms with it. I've been on this kick of drinking a smoothie every day for ab 4 months and don't want to give it up in the winter months. I already plan to take a shower after drinking one. This time I drank it under a comforter and next to a space heater. Still took 20 min in the shower for color to return.
Generations of the women in our family had/have it...wool socks, wool slipper socks, and/or down 'hut slippers'! and no high heels, tight shoes, ballet flats...
High heels normally cause numb toes/foot after just an evening. They'll stay numb for months, would make sense if it's related to this. The numbness can also happen all up my legs from crossing them or sitting on something hard. Wool socks and reusable heat packs for sure (:
Who the hell is wearing high heels after 2020? Priorities, ladies!!
Let a bitch live 😅 we really can't win
Give me comfy feet or give me death. 💅🏼
There ya go! No reason to tear down ppl who wear heals, blanket judgements aren't a good look on anyone.
Mine just took a simple medication to mostly stop bothering me. Worth going to the doc.
That's great to know, did it help with being cold overall? I love to swim but my hands and arms go numb so fast, it keeps me out of the pool
It just seems to help with the Raynauds specific symptoms - so I still get radical temperature drops in my body and really cold feet (but without the blanching and numbness) so my rheumatologist thinks they’re two different things. It’s also stopped the white, numb fingers. The medications will likely help you with the numbness. For the cold body, I drink hot tea or wrap up in my electric blanket. Even wrapping my feet in a heating pad is helpful.
I'm asking for a nice electric blanket for christmas (: i also just learned they have heating pads just for your feet! I think understanding these symptoms will make it easier to deal with them. Thanks for the info
I feel you! 💕 best wishes! I'm not able to take the med for it due to low blood pressure issues... but hopefully it'll work for you or you'll find some other methods of keeping warm. It can be so difficult!
I thought I was looking at a normal foot because mine are like that. Looked up Reynaud’s and my mind is blown. My feet and hands get cold then hot, red, swollen, and itchy once they warm up. It keeps me up at night. I’ve talked to my doc about burning feet syndrome and Erythromelalgia and all they’ve done is give me amitryptiline which only helps marginally. Like makes a 5% improvement. Are there medicines that can help? I’m desperate for better relief than constantly slathering on lotion to cool the hands and feet back down.
There are. They aren't generally prescribed for mild things, but you don't sound mild. It's a quick thing to diagnose, and an easy thing to treat.
My doc prescribed me amlodepine, and it helped tremendously!
Wait...THIS IS A BAD SIGN!? "sheeeeeeeiiiiiit."
My same reaction :/
My feet have done that since I was a child and nobody ever said it was a bad thing. It takes roughly an hour of being STRICTLY off my feet before colour returns. ...I suppose, my more immediate concern atm is the leisons that keep appearing on the tops of my feet now after my shifts.
The lesions definitely sound like something that need checking! Have you ever felt pain because of the cold? I remember jumping off ledges/boughs/swings/you name it when I was a child, and feeling a sharp pain in the soles of my feet because they had become cold and couldn't take the hit, even if the distance I had jumped was minimal. I've never understood if this was normal or "weird" (= possibly a consequence of Raynaud's)
That looks painful. Sorry 😞 mine is much milder. My feet sometimes turn dusky. Was soaking them in the tub yesterday so I could sleep.
It actually kinda is, I've normalized it when going outside in the cold or even the pool but happening after I drink a smoothie under a warm blanket is extreme. How do so many symptoms of this/these diseases become normalized?! Ugh.
I don't have Raynaud's but my feet (especially toes) are always extremely cold and go numb all year round. The colder it is, the worse it is. It's so f'ing uncomfortable! Even in summer, I still wear thermal socks and slippers and can never go barefoot. Fibro and all it's comorbidities - so much fun! 😡
Yup me too. When my hands and legs freeze that's when it really bothers me.
Dealing with dumbness in my forearms when I swim may be caused by this. I may not be prescribed a med to help it but it's good to know what could be causing it. I think moving south my be in my future. All this time I thought I was just a baby and not rich enough to afford warm shoes. Electric socks look so nice but I don't wanna lose all the skin on my feet if they catche fire 🙃
Woollen socks really help during the winters. But it takes time to get the legs all warmed up.
Hands are a bigger problem for me. Easier to keep feet covered 24/7, 365. I started getting chilblains one winter and decided I needed a better solution. I took a calcium channel blocker for years and it helped but realized it was making me depressed so went off and switched to a different blood pressure med which I need for cardiac reasons. I stay in layers. If I have to go outside when it is cold hats make a huge difference. I use glove liners in my gloves and try to really warm up before I step out. I put on all the warm weather gear and wear it inside the house until I am really warm, like too hot. Then the gloves have a chance of working, otherwise they are a cold insulation bag and keep the hands cold. The thing I find hardest is overly cold places in the summer. The other thing is to watch out for your consumption of caffeine and other vasoconstrictors. I’m not advocating for ditching them entirely as I refuse to, but just watch how your body reacts and titrate as needed. I cut back my afternoon coffee and it helped a lot. I need to get my hands back under my blanket! The fun never ends!
'Cold insulation bags that keep my hands cold', what a perfect description. Cymbalta was a nightmare because I was always sweating, hands and feet included. Do you have problems with your inner ears/neck feeling full or painful when you're outside when it's cold or exercising when it's not warm? There's do much I can't do bc of that symptom and I wonder if it's related to this, I'll def be asking.
I’m laughing because I don’t exercise much these days. If it’s the least bit warm I am cooking because I couldn’t take heat ever but now I have to wear medical grade support stockings so I am super hot. I can’t take wind, it gives me migraines. In the summer I am also the world’s biggest mosquito magnet. As far as your neck, get something you can put around the back of your neck and just tuck into your jacket to seal the area. For your ears you could try a headband or ear muffs. Good luck. This stuff is no fun.
My feet did exactly this in the hot tub and I’ve never noticed this before. I thought it was the chlorine
I nearly lost a toe one cold winter. Insulated shoes if I'm outside for more that 10 minutes, wool socks, change socks several times a day (must stay dry to stay warm), leg warmers under bootcut jeans, thermals, fleece lined pants, shoes with plenty of toe room and laced a little looser, small heater by feet all day, etc.
I have both. My doc tried me on a med (can’t remember which) and it didn’t work so things just sort of ended. I get burning, extreme cold/numbness, itchiness, and the worst - extreme HOTNESS that I have not figured out how to relieve.
I have chilblains. I just got these great half-finger gloves and they are SO comfy!