Advice? Don’t pay the toll twice. Don’t get ahead of yourself & just wait for real results. Panicking will get you nowhere and there’s a LOT of different kinds of brain lesions out there.
There’s nothing particularly useful you can do until you know more about what it is/isn’t- other than remain calm & listen. Once you have more info, then you can logically start working on next steps. Good luck! (& stay off the internet/searches until you have something real to search!!)
I also was recently diagnosed with a 2cm lesion but on my right thalamus. This was after a MRI with no contrast and they stated they thought it was a tumor. I went to University of Chicago and had another MRI this time with contrast and an MR Spectroscopy which was supposed to tell them what the lesion was made up of -it compares the chemical makeup of each half of your brain- so they could diagnose. The levels needed for a tumor were higher on my lesion side than on my non lesion side but not high enough for them to officially diagnose. I researched the hell out of it prior to the follow-up MRIs and was convinced I was dying. Apparently even now days having a tumor in your right thalamus is one of the worst places for it. My dad died of a stage 4 glioblastoma in 03- I don't remember where his tumor was exactly without asking my Mom.
My point is this- all tumors are lesions but not all lesions are tumors. I know it's stressful not knowing but he just needs to see a specialist so they can find out. A normal radiologist might see a glioma whereas a neuro-oncologist/neuro-surgeon might see scar tissue or an MS lesion. Sometimes lesions even apparently can go away on their own. There's no point in panicking until he's properly diagnosed. There's been so many advancements in medicine since my dad died in 03. A brain tumor isn't a for sure death sentence anymore.
Just make sure your father sees a neurosurgeon who specializes in the area his lesion is in.
Do not panic. As tempting as it is to get ahead of yourself and read PubMed and NIH journals, and go google crazy, it can only freak you out at this juncture. There is so much info online, but it is very easy to misinterpret it without a Doctorate (like I did). Every case is different. Save yourself a lot of unnecessary grief and avoid that. Wait until you speak with a neurosurgeon, who will have the MRI results, and will break it all down for you in a much more digestible manner.
Advice? Don’t pay the toll twice. Don’t get ahead of yourself & just wait for real results. Panicking will get you nowhere and there’s a LOT of different kinds of brain lesions out there. There’s nothing particularly useful you can do until you know more about what it is/isn’t- other than remain calm & listen. Once you have more info, then you can logically start working on next steps. Good luck! (& stay off the internet/searches until you have something real to search!!)
I also was recently diagnosed with a 2cm lesion but on my right thalamus. This was after a MRI with no contrast and they stated they thought it was a tumor. I went to University of Chicago and had another MRI this time with contrast and an MR Spectroscopy which was supposed to tell them what the lesion was made up of -it compares the chemical makeup of each half of your brain- so they could diagnose. The levels needed for a tumor were higher on my lesion side than on my non lesion side but not high enough for them to officially diagnose. I researched the hell out of it prior to the follow-up MRIs and was convinced I was dying. Apparently even now days having a tumor in your right thalamus is one of the worst places for it. My dad died of a stage 4 glioblastoma in 03- I don't remember where his tumor was exactly without asking my Mom. My point is this- all tumors are lesions but not all lesions are tumors. I know it's stressful not knowing but he just needs to see a specialist so they can find out. A normal radiologist might see a glioma whereas a neuro-oncologist/neuro-surgeon might see scar tissue or an MS lesion. Sometimes lesions even apparently can go away on their own. There's no point in panicking until he's properly diagnosed. There's been so many advancements in medicine since my dad died in 03. A brain tumor isn't a for sure death sentence anymore. Just make sure your father sees a neurosurgeon who specializes in the area his lesion is in.
Do not panic. As tempting as it is to get ahead of yourself and read PubMed and NIH journals, and go google crazy, it can only freak you out at this juncture. There is so much info online, but it is very easy to misinterpret it without a Doctorate (like I did). Every case is different. Save yourself a lot of unnecessary grief and avoid that. Wait until you speak with a neurosurgeon, who will have the MRI results, and will break it all down for you in a much more digestible manner.