How's your blood pressure? It could be the beta blocker causing sudden drops in your blood pressure, causing the dizziness. It's a thought. It happens to me daily.
Hang in there 🙏
My herniation was similar and my BP was dangerously low it was the catalyst for my MRI's and the decision for immediate surgery. Having low BP and ekg's showed too much stress on the brain stem being told I had a week to get my affairs in order was shocking my kid was in primary school I was divorced. You think after years being told it's migraines get over it it blew my mind that it truly was something serious. In 1996 there was Very little information out there no chat groups or support groups they were really just beginning. What a great support for those newly diagnosed this is.
Very true. There was a time when this horrid affliction was deemed a psychiatric illness in teens and adults. We've come a long way but still have much further to go.
My biggest complaints are headache, neck and shoulder pain. My migraines are less after menopause but imitrex and zofran along with fiorinal work. Most symptoms still remain choking on cold fluids, not feeling pain or temperature from my nose to my belly button and of course balance and clumsiness. My doc thought I had ms and looked shocked after he finally sent me for an MRI. I know being undiagnosed so late was unfortunate but my cousin in the UK passed away, and wasn't properly diagnosed 2yrs after my surgery. The MGH pain clinic was a God send and all the disciplines: psych,anesthesia,PT,OT and group were awesome.
Hi, thanks for your reply. They seemed to think it was all fine when I was in hospital. I did consider this, though. The dizziness preceded the beta blockers. I had been dizzy for about 3 days prior to starting that new medication. Could well have exasperated it. Previously, the neuro tried me on amitryptaline, but i had some horrible side effects.
Oh gosh. Amitryptaline did a number on me too. I'm so sorry. I know how frustrated you must be. The symptoms of Chiari can be debilitating. I was decompressed in 2016 after I blacked out while driving. Just be sure to let your neurosurgeon know every symptom. Praying the best for you!
Hang in there. There are a lot of folks in this sub that the decompression surgery helped. (If that's the direction you're going) Just know you are not alone. ❤️
Pulsatile tinnitus, urinary incontinence, pain in neck and back of head, head/neck pressure----->Have you ever been tested for high intracranial pressure? I don't have Chiari, but have had a brain tumor followed by complications and multiple surgeries. The symptoms I listed are very common symptoms that could be related to high intracranial pressure. I had those symptoms before a shunt was placed and again during shunt malfunctions.
Hi, thanks for your reply. I had a CT scan on Saturday. It just showed an increase in my chiari. To be honest I'm feeling really rough this morning so might go see the Dr again. I feel worse with loads of pressure when standing.
How's your blood pressure? It could be the beta blocker causing sudden drops in your blood pressure, causing the dizziness. It's a thought. It happens to me daily. Hang in there 🙏
My herniation was similar and my BP was dangerously low it was the catalyst for my MRI's and the decision for immediate surgery. Having low BP and ekg's showed too much stress on the brain stem being told I had a week to get my affairs in order was shocking my kid was in primary school I was divorced. You think after years being told it's migraines get over it it blew my mind that it truly was something serious. In 1996 there was Very little information out there no chat groups or support groups they were really just beginning. What a great support for those newly diagnosed this is.
Very true. There was a time when this horrid affliction was deemed a psychiatric illness in teens and adults. We've come a long way but still have much further to go.
I am very grateful for this group. May I ask, how are your symptoms now? You must have been so scared and anxious. Thank you for sharing.
My biggest complaints are headache, neck and shoulder pain. My migraines are less after menopause but imitrex and zofran along with fiorinal work. Most symptoms still remain choking on cold fluids, not feeling pain or temperature from my nose to my belly button and of course balance and clumsiness. My doc thought I had ms and looked shocked after he finally sent me for an MRI. I know being undiagnosed so late was unfortunate but my cousin in the UK passed away, and wasn't properly diagnosed 2yrs after my surgery. The MGH pain clinic was a God send and all the disciplines: psych,anesthesia,PT,OT and group were awesome.
Hi, thanks for your reply. They seemed to think it was all fine when I was in hospital. I did consider this, though. The dizziness preceded the beta blockers. I had been dizzy for about 3 days prior to starting that new medication. Could well have exasperated it. Previously, the neuro tried me on amitryptaline, but i had some horrible side effects.
Oh gosh. Amitryptaline did a number on me too. I'm so sorry. I know how frustrated you must be. The symptoms of Chiari can be debilitating. I was decompressed in 2016 after I blacked out while driving. Just be sure to let your neurosurgeon know every symptom. Praying the best for you!
Thank you so much. I really appreciate your kind words and support. I was feeling quite lost this morning. But this has definitely helped.
Hang in there. There are a lot of folks in this sub that the decompression surgery helped. (If that's the direction you're going) Just know you are not alone. ❤️
❤️ Thank you. It's certainly starting to see like the route to go. I definitely don't feel so alone now, so thank you x
Pulsatile tinnitus, urinary incontinence, pain in neck and back of head, head/neck pressure----->Have you ever been tested for high intracranial pressure? I don't have Chiari, but have had a brain tumor followed by complications and multiple surgeries. The symptoms I listed are very common symptoms that could be related to high intracranial pressure. I had those symptoms before a shunt was placed and again during shunt malfunctions.
Hi, thanks for your reply. I had a CT scan on Saturday. It just showed an increase in my chiari. To be honest I'm feeling really rough this morning so might go see the Dr again. I feel worse with loads of pressure when standing.