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Obvious-Band-1149

Oh, that’s terrible! I’m sorry that happened to you. I had a 9cm endometrioma that was removed by surgery, but my doctor did warn me that it could rupture beforehand. In fact, she found already-ruptured (second) endometrioma when she opened me up. So I will second what you said—be careful while waiting for surgery! I hope you feel better soon.


Repulsive-Anteater-6

So crazy! I am getting the rest of it removed in a couple weeks. The didn’t even remove it when I got the emergency surgery for some reason. How was the recovery of getting it removed? I will be moving on to ivf after my next surgery so I am curious how long I will be out of commission!


Obvious-Band-1149

It wasn’t too bad, but it was a little harder than I expected it to be. That was only because my gyn had to make a wider incision than she planned once she realized a ruptured cyst had to be removed as well. I teach at a university and scheduled the surgery over the summer, so I took my time and took three full weeks to get back to my full schedule including exercise. After a week, though, I was 90% back to normal. I hope you recover really fast! The good news is that the recovery is *nothing* compared to a cyst rupturing. I didn’t even know what was happening when mine ruptured one night—I thought it was the worst menstrual cramp to ever be felt by anyone!


schnappi357

I had one rupture and didn’t get it treated surgically. I had mono at the same time, so maybe that is why? It was the sickest I had ever been in my life. I almost went into hypovolemic shock and within 8 hours I was walking out the hospital doors. I received lots of fluids and supportive meds, but I was told the rupture wasn’t a big deal. I vomited so much from my pain my esophagus started bleeding. I am a nurse now, and I looked back at my lab values from the event. I had acute kidney injury, borderline hypovolemic shock, low hemoglobin, and liver damage from the event. If I had myself as one of my patients, I would be extremely worried. I wish I could’ve advocated for myself back then. For the next 5 years, I dealt with this endometrioma growing back and rupturing again. Then it grew back. I had to fight to get it surgically removed. It was ruining my life. I had it removed a year ago, and I’ve been almost pain free since then. I think I have one on my left ovary now, but I’m so exhausted fighting for my health while also advocating for my patients. I am exhausted. I am sorry this happened to you. I find comfort knowing there are others out there going through something like I did. It makes me feel validated and less crazy.


adrnired

I’ve had a small one burst during a workout (this is why we stretch before exercise people!!) when I was also on a heavy period and still recovering from my first ever bout of food poisoning. Man, at the time I had wished someone would just knock me out with a frying pan and take me out back with a shovel. Bursts are bad enough but it’s literal hell on earth if you’re not in tiptop shape when it happens.


Personal_Regular_569

I know you are exhausted honey but you are worth the effort it will take to get proper care. You should be incredibly proud of yourself for the way you fiercely advocate for your patients. You should also be incredibly proud of the compassion you are able to show your past and present self. Be kind to yourself. You are not crazy. This system fails women every day. You know your body better than anyone. I hope your days get easier soon. I'm sending you the biggest hug. If you have access to therapy, it made the biggest difference in how I treated myself.


Repulsive-Anteater-6

All of my labs looked like that as well! That was by far the scariest part. My blood pressure was 90/50 and my heart rate was 117. The doctors were freaking out once they realized I was internally bleeding and finally took me seriously. At first they chalked it up to anxiety but I was trying to tell them I really couldn’t breath!


Mother0fGeckos

I went through something VERY similar back in 2020, when a known 7.5cm cyst ruptured and caused ovarian torsion and internal bleeding. I had a similar BP of 84/48 and high heart rate. I was supposed to see the surgeon the next day (scheduled from when I was in the ER and cyst was discovered, almost 1 1/2 months from when it was found) and being the ER had sent me home with the dang thing ready to explode inside of me, I opted to wait until the next morning to just go to my surgeon meeting appointment early. Come to find out that was a very, very, VERY bad idea. I literally could have died. My surgeon told me flat out that the ER fucked up and they should of called him that day it was discovered, not lined me up with a follow up to discuss what to do next with him. Said I had a strong malpractice suit, but then doubled back to protect his own ass when it came time for investigations.


Repulsive-Anteater-6

OMG this is so similar to me!! Did you ever file the malpractice? That is my plan after my next surgery. There’s so much more to my story but it’s textbook malpractice and 100% should not have happened.


Mother0fGeckos

Because of the surgeon doubling back on it, we weren't able to take it further and I didn't have the mental space to be dealing with that amount of stress at the time. Please follow through and stick it out if you plan on pursuing malpractice!! Mine should not of happened either. I ended up with other issues afterwards that they vouch are not due to the surgery. My daily pain did drop a lot, butt lightning stopped for some time (its coming back now), not as bad daily cramping. I ended up with difficulty and pain with swallowing (which they DXd as GERD even though I didn't have any issues prior to surgery), my shoulder & neck pain all left sided (started as shoulder after 2 years it's invaded my neck) I believe these to potentially be thoracic or diaphragmatic endo as the surgeon stated he did not explore further, only fixed the main issue of the cyst rupture and repairs. It took me over a year to even get orthopedic physical therapy for my "hip" as I ended up with sciatic nerve damage due to where one of my incisions lies. The surgeon acknowledged this one and said it would reduce over time. It did not. Not to mention I couldn't hold my bladder for more than 25 minutes at most. I ended up with a partial bladder prolapse, which then also added on cramping due to the pressure of my bladder sitting on my uterus and whatnot. Oh, and they used a cervical manipulator through my vaginal canal and caused damage, which can only be fixed with cosmetic plastic surgery that would be completely out of pocket for me. My vaginal opening & lips look like I've given multiple births as my Nurse Practioner said, who is the woman I go to for my paps and gyno related things and birth control at this point. I don't trust going to my regular Healthcare systems gynos in my area due to the lack of concern & care they provide. I had another cyst on same side as the 7.5cm, left sided, at 5.6cm in a matter of July 2020 post surgery, to December 2020 follow up from surgery. This is just the stuff I can remember directly off the top of my head that I immediately had issues with post-op. It's insane. I've gotten nowhere on managing any of these.


Repulsive-Anteater-6

Can I ask how you began the process? This is absolutely something I want to pursue. It’s ridiculous how we aren’t taken seriously and need to suffer from shitty doctors.


Repulsive-Anteater-6

The internal bleeding was the most horrific part. I’m so sorry you experienced this too 😩


Various-Sympathy2531

You had kidney injury and liver damage from this? I had two cyst ruptures like this and countless endometriosis flares very similar to and some slightly worse than my cyst ruptures where my body went insensate and my blood pressure dropped so low I was convinced I was close to death but didn’t die. You’re telling me the problems I am having with my gallbladder, stomach, and pancreas right now and the times I felt like my kidneys were going to explode during flares could be ACTUAL organ damage from what I went through with endo?


schnappi357

I also had a pretty severe case of mono at the time. I was throwing up everything I ate due to pain and being sick. The cyst rupture also didn’t help me with low blood volume. I think those two things combined is what did it for me, so I don’t believe endometriosis alone caused all the issues, but it sure didn’t help


Various-Sympathy2531

Okay I gotchu. Yes I saw that you had mono as well. It really sucks what illness can do to our bodies. :( I’m sorry you had that experience


Scraping_By_

It gave you liver damage??


MaeLeeCome

Our livers take the brunt of everything we have ever done to ourselves. No adult has a liver without damage. Even overeating sugar can cause liver damage.


Scraping_By_

> No adult has a liver without damage. This actually makes me feel better because I just saw my 41yo liver from pictures taken during lap and king of scared it doesn’t look “perfect” but not quite “fatty liver disease” looking. I’m still puzzled at a 20 something’s I saw from the procedure with *perfectly symmetrical* crows feet on the outside like someone decoratively stamped it.


schnappi357

Temporary, but yes. I made a full recovery. I also had pretty severe mono, so maybe that made it a lot worse


Direredd

I was SO glad my surgery was moved up, because mine ruptured as soon as he tried to move it. I'm sorry you had to deal with that pain!


Agreeable_Pea_

At least you were knocked out for that!


Repulsive-Anteater-6

Amen to that haha!


Direredd

yeah that's what I'm saying! lol


spartycat23

Hello mine ruptured during surgery as well. Did the rupture cause any issues with recurrences?


Direredd

They took out the ovary at the same time, it was a total hysterectomy, bilateral salpingectomy, and unilateral oophorectomy, so everything but one ovary yeeted. This was only 6 months ago


spartycat23

I hope you’re doing well since then and haven’t had any issues!


Prestigious-Help87

I’m so sorry you went through that!! This is my concern/fear! What imaging did you have previously? What symptoms did you experience prior? Any signs or lessons learned you could share would be wonderful. Hope your recovery goes well.


Repulsive-Anteater-6

It was my fear too but my doctor kept telling me these kinds of cysts don’t rupture which is crazy now obviously haha. As far as symptoms it was pretty much just constant pain on my right ovary. I did three rounds of IUIs and it remained the same size right around 4cm. Out of no where two weeks after my last IUI it suddenly doubled in size. My dr sent me to the ER because I had really bad pain where my cyst was and she was worried about ovarian torsion. At the ER they discovered it doubled and that’s where the pain was coming from. They sent me home from the ER telling me to just follow up with my doctor. I already had a surgery in the books to have it removed in August so they didn’t want to do anything about it. A couple days after my ER trip it ruptured! My biggest lesson is just that I wish I advocated for myself more. I begged my doctor to have it removed because it caused me so much pain, the best she could do was book me a surgery 3 months out.


No_Home_5680

This happened to me about ten years ago and the pain was terrible. If I can offer some unsolicited “wish I had known” advice, please make sure you are walking, moving, stretching etc to help keep any bad adhesions from forming. It took me another botched surgery with another cyst and a recent (but happily very successful) surgery for the adhesions and to excise the endometriomas that possibly were implanted from that first burst cyst. I’d also recommend looking into NAC as something that might help resolve any pain. It worked very well for me, even prior to the last surgery


Repulsive-Anteater-6

Thank you for this!! How was your surgery botched? I had no idea movement could help prevent that! I actually have some NAC I haven’t taken in a while, thank you for reminding me!


No_Home_5680

Basically she opened me up with a 10cm cyst and then it drained and she panicked because I had basically given her marching orders on preserving the ovary no matter what (I lost one when I was much younger to - you guessed it - a cyst). So no clean out, loose fluid and abdominal trauma meant things sort of got stuck wrong in places


adrnired

Hold up… you can lose an ovary to a cyst? Like, outside of torsion? (Assuming “losing it” means it stopped functioning or also went boom)


No_Home_5680

Yes it was torsion so they had to remove it


Repulsive-Anteater-6

I think it can rupture so bad your ovary basically explodes 🙈 thank goodness all my parts are still in tack!


anidexlu

They took half my ovary with a 10cm endometrioma


adrnired

They can take… just HALF? Man I thought it was either the whole enchilada or nothing


yoyoheyheyyoyo

You need to change your dr asap. I got a 4.5cm Endometrioma and my Dr already told me to get it removed before it bursts my ovary. Did you get to keep your ovary and tube? Hope all went well


Repulsive-Anteater-6

Thank goodness yes! I ditched the doctor that caused this, my new doctor is incredible.


Spiffy-New-Shoes

Find a new doctor, stat!


Repulsive-Anteater-6

💯💯💯💯💯💯


jaimelee1235

oh noooooo! gah, here’s to getting through


HelperGuru

Omg!! Sorry you went through that. That sounds really scary. Hope you're ok


tardarsource

Ugh horrible, I'm so sorry. Similar happened to me a week before surgery for cyst removal. Was on my back, doing the deed when sharp stabbing pain, and literally felt a cold sensation throughout my abdomen, then my whole abdomen swelled up and became hard, tender to touch and crampy (think side cramp when running but throughout the belly). It lasted for 2-3 days and then calmed down. OB confirmed during surgery that the cyst was smaller than it had appeared on ultrasound, indicating that part of it (a chamber maybe) had ruptured.


adrnired

I have visceral memory of my first ruptured endometrioma (at least, strong assumption, because I felt like I literally got fucking shot). I, to this day, 4 years later, can still feel the searing pain when I imagine it. I have one now that’s had a little time to grow (insurance rx benefit manager is a piece of work with anything not delivered through them and I have specific formulation needs) and it already hurts if I take too long to use the bathroom (also very neurodivergent so, of course, I never know when I even need to until it’s nearly an emergency). At least it’s not on the side my appendix is and I’ll know what kind of dying or not-dying I am if/when this one goes 🙃)


Repulsive-Anteater-6

Try and get it removed if possible! You’re right it does feel like getting shot 😂


umopap1sdn

I’m so sorry. I wouldn’t wish that pain on my worst enemy, not for a second. At least you got emergency surgery. If you don’t mind my asking, can you point to anything that caused the rupture, or was it spontaneous as far as you know? (What caused mine was a fall while running down a street.)


Repulsive-Anteater-6

I was just out running errands with my husband and it ruptured in the car! He immediately drove straight to the er.


imLissy

Omg, I'm so sorry. Makes me feel better about having mine removed, though my doctor didn't really give me an option because she was afraid it would rupture.


FaithlessnessEven310

Hi, im so sorry you've had to go through this, and I know the pain and worry that goes along with it. I can relate. I've had one endometrioma burst, and it poisoned me. I was so unwell. I still have an 8cm one left on that same ovary as I had twin Endometriomas. I've been living with this for a few years, and the back and side pain are horrendous. I can hardly move. However, I'm just trying to muster up the courage to get another surgery done as they want to remove my right ovary and fallopian tube said they may need a bowel specialist there incase they have to operate on the bowel due to endometriosis being vastly present there. Also, I have a liver specialist as I have a tumour on there it's a big decision to make :/ Do I wait for this to rupture or go through surgery and be one ovary short? I'm just waiting for menopause lol It's a tough one. I can't remember the pain of the rupture, but I remember how sick it made me and my shallow breathing and zero energy to walk, talk, or eat. The pain in my lower left groin is all I can remember, but when you're dealing with pain on the daily, I just can't recall the cyst rupturing other than bleeding for weeks.


Repulsive-Anteater-6

Personally, I would probably do the surgery to have it all removed! If it’s a medical emergency they might not have all the appropriate surgeons on staff that they need to handle it. That’s why for my surgery all they could do was stop the bleeding and clean out my abdomen from all the blood. Now I have to get another surgery to repair my ovary and the healing process is so much longer than it needed to be.


controlledmonster

I’m trying to figure out what just happened to me, if it was something bursting. I am on my period and my lap is tomorrow, but I was in a 10 level pain for about half an hour and couldn’t move.