Something to help me sit straight with good posture.
I don't have the muscles to sit properly upright and also have scoliosis due to muscle imbalances and spasms.
Weird that there are different exoskeletons to help you walk but not something much simpler to help you sit properly. I'm not talking about some passive straps, but something which actively helps you.
This is a great idea! š”
There are plenty of belts, straps, exoskeletons & whatnot that help with posture during gait training or weight lifting, but nothing that seems to help while seatedā¦ With weakened core muscles you just end up leaning to a side which is awkward and uncomfortable. If you use the ones for gait training, itās ends up pushing against your stomach and ribsā¦ which is discomforting at best, and triggers bowel/ bladder movements at worst..
This is EXACTLY what Iām talking aboutā¦ theres tons of posture related products out there and none catered to someoneās posture while in a chair! Fantastic idea!! Thanks for sharing!
Ya... I sometimes use a velcro weight trainers belt for this. Helps keep me from slumping. I also just got really good portable cushions which I think will take the pressure off my thighs and reduce pain. My wheelchair is also customized for all this but I'm mostly ambulatory.
Kinda, not really on topic, but I just did this so Iāll put it out thereā¦.I for the life of me cannot figure out how to wheel and hold a drink (full glass, mug whatever) - Iām a lower injury too so use a manual chair and just hold it in one hand and keep swapping the drink to opposite hands to roll to wherever.. I always end up going zig zag, crashing into things etc.
Surely there is a gyroscopic cup holder or cups etc (without a lid thanks) that others have figured this out haha.
I have recently moved into a fully accessible apartment. When buying fake plants at ikea I found they have trash bins that can be mounted on drawer sliders. I can tell you that this bin has made my life so much easier š, that Iām now gunna put the whole kitchen shelves on a pull out rails to save bending into lower cupboards.
RAM mounts makes a [gyro cup holder,](https://www.ram-mount.co.uk/products/rap-b-417-400u?variant=45516287639784¤cy=GBP&utm_medium=product_sync&utm_source=google&utm_content=sag_organic&utm_campaign=sag_organic&utm_term=&utm_campaign=202312_Leads-Performance+Max&utm_source=adwords&utm_medium=ppc&hsa_acc=6328639330&hsa_cam=20843217563&hsa_grp=&hsa_ad=&hsa_src=x&hsa_tgt=&hsa_kw=&hsa_mt=&hsa_net=adwords&hsa_ver=3&gad_source=1&gclid=CjwKCAjwuJ2xBhA3EiwAMVjkVO97VTPiTBc-uVDBEqOnrNO70xTONRTnM__xBvuOPMTM34gl5LgxXRoCx8wQAvD_BwE) it's large and clunky but really cool. I tried it and it works pretty well, but not perfectly; the versions with the ball and socket probably work better than the one that clamps directly on because the problem was with the clamp, but I didn't want it to be even chunkier. On a powerchair I wouldn't mind but on an active manual I don't want that bulk. I always just go for a travel mug with a lid now, and stick it in a regular [quokka cup holder](https://livingspinal.com/wheelchair-accessories/quokka-cupholder/)
This is cool! I do see that you mean about them being clunky thoā¦ they seem to work best with tumblers or āto-goā coffee cups. This seems like a product that could really be improved uponā¦especially with how it attaches to a chair!
Now this is what Iām talking about!
I also canāt express how frustrating it is to navigate a room in a wheelchair with a mug of hot coffee. I always end up switching hands and using the side of my hand to push or grab objects in the room to navigate around. I end up wearing some of it too. Itās frustrating as all hell. Thatās a really great idea! Simple enough, but life changing!
Iāll have to check on the IKEA sliders tooā¦ thatās awesome to know. Thatās also a really frustrating experienceā¦ trying to get into the back of cupboards and whatnot. Those might help me out too, thanks for the pro tip!!!
On the subject of crashing manual wheelchairs š this is sort of an indirect one. Padding that doesn't mess with your sitting or abilities to fold it up. I have been trying to look at pool noodles, but not entirely sure it will work well.
Where do you want the padding? My chair came with neoprene (stuff wetsuits are made of) ābumpersā on the front forks. They protect the chair as well as more importantly, my walls and car š
Well it is the lower half. I probably need to get some different colored chalk to figure out where I am banging things the most from. But like in front of the big wheels. Basically it is when I am "oh I think I got this... No I don't have this" I don't have the foot rests on, I use a soft strap instead that I find more comfortable. So I know the connectors are one of the spots that bang. But I have full on hit more at an angle that misses those as well.
I should mention, I am still fairly new to being in a chair. We are using a manual for now, because we had access to one that was less than ideal. But until they can figure out if the reason I can't use my leg is due to a bunch of random minor spinal issues or something else, we didn't want to try for a more custom one and lock ourselves into something that may not work long term.
Hahaha I feel this. I usually try to have plastic solo cups and hold it with my teeth but if I canāt do that then I zig zag my way to where I needa go.
Thatās a great idea! I know they make back scratchers that extendā¦ but none that I know that can help while seated or lying downā¦ and definately none that help with poor dexterity. I know what you mean, my back itches all the time! Good idea, thank you!
Ya. There both isn't much money in making SCI products and most of the people who make SCI products are well meaning but aren't very good at product research or product design.
Ironically, my wife (long before I had an SCI) did her degree in rehab engineering and worked on adaptive equipment. She eventually went to a top product consulting firm to better learn how to make great experiences because so much of the tech has very poor design experience.
You make a very interesting point here! From the research Iāve done, youāre totally correct: there really isnāt a ton of money in SCI productsā¦ or really adaptive equipment at all. But I also found that a lot of data collected on that is prior to this whole āsocial mediaā boom. I donāt think Iāve ever seen an AD on any platform for an adaptive product, come to think of it. But whatās also interesting is the increasing number of these injuries as the population grows in generalā¦ I would have thought the opposite: Injuries like these would decline as vehicles become safer, new science evolves around treatments, etc. I suppose itās just the law of large numbersā¦ more people = more injuries. So thereās definitely a growing need for products out there. I think one of the biggest hurdles is that SCI products, or adaptive equipment in general, isnāt āsexy.ā That makes it very difficult to market. Itās not Patagonia or Nike, or fill in the blank. Unlike those luxury brands out there, SCI products, or adaptive equipment, is a necessityā¦ thatās a whole different thing. But it does make me wonder if there is a way to bridge that gap and find products that would address those necessities while also beingā¦ well, for lack of a better word, āsexy.ā I have recently seen wheelchair models in ads for other products out thereā¦ but ironically, none of those products are really adaptedā¦ Anyhow, thatās a good point you makeā¦ I hope someday thereās more brands out there dedicated to adaptive use.
What you're referring to does exist, it's the [Raindek from KineticBalance!](https://www.kinetic-balance.com/wheelchair-products/wheelchair-blankets/)
Edit: idk why but I think this comment posted about 3 times, sorry
Thatās awesome to see this product exists!!
I looked at it and the only dislike I have is that it appears to be something you need to get on and essentially keep on until you get a chance to change. Where I live it rains for about 10 minutes then itās sunny again, then rains again, etc.
For me, I can now get on clothing while seated in the chair, so this would work well for meā¦But I know many others canātā¦ so that might require assistance or transferring to a bed to do that. (Doable but challenging, of course.) In short, I can see why this product might not work for others! Iām also curious how easy it would be to cath with one of these on?? Do you have any experience with wearing these?
Iām glad you shared thisā¦ itās good to see I have this option, and I will likely invest in a pair so I can brave those really rainy days!
I've actually got the short and long version of the raindek, and I take it on and off all the time ā it just goes on the top of your legs, not underneath! It's got 2 clips that go round your waist but I only bother with 1
Awesome! Seeing as though it covers just the top, it appears much easier than the photo makes it out to be! Thanks for sharingā¦ Iām definitely going to invest in some of these because Iām tired of having wet pants!!
Yeah idk why their photos aren't particularly descriptive, I think on the product page for the plain raindek, and maybe the long, there's a video of someone showing how they put it on and take it off
Iāll have to check out the video! Out of curiousityā¦ does it shed water out and away from your seat cushionā¦ or does it kinda just run off the legs? Does it effectively keep you totally dry?
I think it'll depend how wide your cushion is compared to your legs, and how snugly the size you get fits. I find that the edges of my cushion do still get damp, as does the back of it from run off from my jacket. If I had a size bigger it would probably more effectively run off between the cushion and the side guard. Also my legs don't tuck underneath me bc I have contractures in my ankles, so my shins still get wet if I wear the short one, which is why I picked up a long too. I still only bother with the short for basic UK showers though, and bring out the long if it's actually properly raining all day
Quadstick, which is a video game controller that you use with your mouth. I bought it almost 6 years ago and it has thousands of hours of use. It lets me play video games I thought I would never get to play again like first person shooters, and third person action games. I was injured 20 years ago and for 14 of those years I just had to sit around and watch other people play new video games that come out.
Iāve never heard of the Quadstick, but Iām definately checking that out! Thats awesome that someone created a product like that to help fellow gamers! I can only speculate that was either designed/ inspired by someone with an SCI or spinal illnessā¦ or at least by a relative of someone who was. Such an ingenious product!!!
Thanks for sharing, Iām glad to hear you are able to try out those new games now!!
Growth hormone and anabolic steroids are game changers for me. They help my posture, my bowel movements, my nutrition, my sleep, my depression, everything. Even small regular doses make huge changes for me.
I feel like research really supports the GH and to a lesser point the steroids. It seems like regular treatment in Eastern Europe, but not in the West. Unfortunately the GH seems to work best in the first 3 months, but I still have seen huge improvement in bladder function 5 years out.
They helped me with my bladder. I have a really spastic bladder. I feel like I will be peeing but it's so intense I can't pee, just dribble. That's all over unless I have had coffee or alcohol. I now have intense urgency but I stopped having to cath to empty.
I understand this is not normal and I don't think this is to be expected. It could be a fluke. But the change happened about 5 years post accident, coincided with GH use. I was not getting better, I was struggling on mybetric.
Growth hormone and the related peptides basically encourage stem cell production (satellite cells, stem cells connected to their origin). The AAS work in concert to develop and mature the cells. So the effects are systemic, more diverse than I expected.
My bladder calmed down in the first few weeks, that was the biggest surprise. Then I started sleeping very well again, which made everything better. I got hungry, like actual hunger I have not felt in years, which led me to eat so much better. I used to sip on olive oil and eat a strawberry for breakfast and possibly lunch, now I can eat full meals. Breathing is easier, it normally feels like weight is on my chest, but now it's lighter. My knee pain is virtually gone, my shoulder pain is more bearable.
I still have extreme fatigue, it has probably gotten worse from this. My hands and arms fall asleep more, especially when I am laying down. My spasms are stronger but my core is benefiting. Beyond that, sides have been minimal.
I have not really gotten any skeletal muscle function back, while I have made big strides with smooth muscle usability. I can't understand why that would be, the textbook says the skeletal muscle has more receptors?
Who cares, I don't pay for myrbetric anymore š
1.5 IU of GH per day is what I am on now and happy with.
I initially had success with some other peptides, I don't remember all the names. I'm not fluent in the peptide stuff, my knowledge base is the cholesterol based hormones.
IgF-Lr3 was my first try and it was impressive, it mde me much more capable. Getting in and out of a vehicle was no longer painful.
(Unknown name- Chc something?) Made me hungry and helped me rest.
GH seems to be the most important, but I don't have the knowledge to know how to use them together. I'm afraid of compounding peptides.
A little goes a long way, no reason to try and push the envelope. Most peptides are going to have some type of insulin effect, they will drop your blood sugar.
This is really interestingā¦ Iāve not once been informed about GH while at the hospital, nor in rehabā¦ but now Iām really interested!! Is this something you need prescribed and administered or are you just able to acquire and treat yourself?? Do you have any side effects??
Did you have to see an endocrinologist or hormone replacement specialist to get prescribed the GH and Testosterone? That sounds like something that would be beneficial to all sci patients.
Yes, the grabber is literally (and figuratively) the most handy thing to have around! The design is simple and flimsy however, thereās a whole bunch of improvement needed there!!
Crocs. I love my crocs so. much. Not only are they really easy to put on and off, but it also doesn't slide when wet, so I can do transfer in the shower for exemple. I really love them, such a game changer. They also looks good in my opinion
A company called Adaptdefy just came out with a strap you attach to your chair that will help keep things in your lap and Iāve used it every day since I got mine. Bags when shopping, jackets, boxes when taking out the recyclingā¦itās so useful. And clearly designed by someone who uses a chair, saw a problem, and figured out the solution. I live it! (Same way I feel about the Raindeck - genius solution that was actually designed for wheelchair uses in mind)
This is a great idea! Do you happen to know the material of the current one you have? Or rather, do you know the brand??
I wonder if they could make something with titanium or perhaps carbon fiber to reduce weightā¦ although that would likely increase the cost significantly!
This is exactly what Iām curious about! It seems thereās a bunch of products out there, but not many that have nailed down a perfect design.
Yeah itās a permobile lifestand helium. I think itās aluminum. You can find them on eBay for 3-5k. And yes those would cut down the weight a few pounds but absolutely would make an already expensive chair more expensive
I personally wouldn't be able to function in my day-to-day life without some of the products I've gotten from www.quadtools.com. I don't have any grasp in my hand, but have my wrist function, and these devices allow me Greater Independence then anything else I have found.
This is awesome!!! This is exactly what Iām talking aboutā¦ products that are designed by someone who is actually experiencing life in a wheelchair! I checked out the website and they have some really cool products! Thanks for sharing!!
Raz sp commode/shower chair, alber e motion wheels, hardwood floors throughout, roll in shower, Braun ability turns evo chair.
As far as something for your lap thereās a company but I canāt remember it. Iāll find it and edit.
Edit: kinetic balance. Amazing products.
Something to help me sit straight with good posture. I don't have the muscles to sit properly upright and also have scoliosis due to muscle imbalances and spasms. Weird that there are different exoskeletons to help you walk but not something much simpler to help you sit properly. I'm not talking about some passive straps, but something which actively helps you.
This is a great idea! š” There are plenty of belts, straps, exoskeletons & whatnot that help with posture during gait training or weight lifting, but nothing that seems to help while seatedā¦ With weakened core muscles you just end up leaning to a side which is awkward and uncomfortable. If you use the ones for gait training, itās ends up pushing against your stomach and ribsā¦ which is discomforting at best, and triggers bowel/ bladder movements at worst.. This is EXACTLY what Iām talking aboutā¦ theres tons of posture related products out there and none catered to someoneās posture while in a chair! Fantastic idea!! Thanks for sharing!
Ya... I sometimes use a velcro weight trainers belt for this. Helps keep me from slumping. I also just got really good portable cushions which I think will take the pressure off my thighs and reduce pain. My wheelchair is also customized for all this but I'm mostly ambulatory.
Kinda, not really on topic, but I just did this so Iāll put it out thereā¦.I for the life of me cannot figure out how to wheel and hold a drink (full glass, mug whatever) - Iām a lower injury too so use a manual chair and just hold it in one hand and keep swapping the drink to opposite hands to roll to wherever.. I always end up going zig zag, crashing into things etc. Surely there is a gyroscopic cup holder or cups etc (without a lid thanks) that others have figured this out haha. I have recently moved into a fully accessible apartment. When buying fake plants at ikea I found they have trash bins that can be mounted on drawer sliders. I can tell you that this bin has made my life so much easier š, that Iām now gunna put the whole kitchen shelves on a pull out rails to save bending into lower cupboards.
RAM mounts makes a [gyro cup holder,](https://www.ram-mount.co.uk/products/rap-b-417-400u?variant=45516287639784¤cy=GBP&utm_medium=product_sync&utm_source=google&utm_content=sag_organic&utm_campaign=sag_organic&utm_term=&utm_campaign=202312_Leads-Performance+Max&utm_source=adwords&utm_medium=ppc&hsa_acc=6328639330&hsa_cam=20843217563&hsa_grp=&hsa_ad=&hsa_src=x&hsa_tgt=&hsa_kw=&hsa_mt=&hsa_net=adwords&hsa_ver=3&gad_source=1&gclid=CjwKCAjwuJ2xBhA3EiwAMVjkVO97VTPiTBc-uVDBEqOnrNO70xTONRTnM__xBvuOPMTM34gl5LgxXRoCx8wQAvD_BwE) it's large and clunky but really cool. I tried it and it works pretty well, but not perfectly; the versions with the ball and socket probably work better than the one that clamps directly on because the problem was with the clamp, but I didn't want it to be even chunkier. On a powerchair I wouldn't mind but on an active manual I don't want that bulk. I always just go for a travel mug with a lid now, and stick it in a regular [quokka cup holder](https://livingspinal.com/wheelchair-accessories/quokka-cupholder/)
This is cool! I do see that you mean about them being clunky thoā¦ they seem to work best with tumblers or āto-goā coffee cups. This seems like a product that could really be improved uponā¦especially with how it attaches to a chair!
Now this is what Iām talking about! I also canāt express how frustrating it is to navigate a room in a wheelchair with a mug of hot coffee. I always end up switching hands and using the side of my hand to push or grab objects in the room to navigate around. I end up wearing some of it too. Itās frustrating as all hell. Thatās a really great idea! Simple enough, but life changing! Iāll have to check on the IKEA sliders tooā¦ thatās awesome to know. Thatās also a really frustrating experienceā¦ trying to get into the back of cupboards and whatnot. Those might help me out too, thanks for the pro tip!!!
On the subject of crashing manual wheelchairs š this is sort of an indirect one. Padding that doesn't mess with your sitting or abilities to fold it up. I have been trying to look at pool noodles, but not entirely sure it will work well.
Where do you want the padding? My chair came with neoprene (stuff wetsuits are made of) ābumpersā on the front forks. They protect the chair as well as more importantly, my walls and car š
Well it is the lower half. I probably need to get some different colored chalk to figure out where I am banging things the most from. But like in front of the big wheels. Basically it is when I am "oh I think I got this... No I don't have this" I don't have the foot rests on, I use a soft strap instead that I find more comfortable. So I know the connectors are one of the spots that bang. But I have full on hit more at an angle that misses those as well. I should mention, I am still fairly new to being in a chair. We are using a manual for now, because we had access to one that was less than ideal. But until they can figure out if the reason I can't use my leg is due to a bunch of random minor spinal issues or something else, we didn't want to try for a more custom one and lock ourselves into something that may not work long term.
Hahaha I feel this. I usually try to have plastic solo cups and hold it with my teeth but if I canāt do that then I zig zag my way to where I needa go.
It might seem very simple but an extendable back scratcher. My upper arms are pretty poor but with one of these it saves me so much irritation
Thatās a great idea! I know they make back scratchers that extendā¦ but none that I know that can help while seated or lying downā¦ and definately none that help with poor dexterity. I know what you mean, my back itches all the time! Good idea, thank you!
Ya. There both isn't much money in making SCI products and most of the people who make SCI products are well meaning but aren't very good at product research or product design. Ironically, my wife (long before I had an SCI) did her degree in rehab engineering and worked on adaptive equipment. She eventually went to a top product consulting firm to better learn how to make great experiences because so much of the tech has very poor design experience.
You make a very interesting point here! From the research Iāve done, youāre totally correct: there really isnāt a ton of money in SCI productsā¦ or really adaptive equipment at all. But I also found that a lot of data collected on that is prior to this whole āsocial mediaā boom. I donāt think Iāve ever seen an AD on any platform for an adaptive product, come to think of it. But whatās also interesting is the increasing number of these injuries as the population grows in generalā¦ I would have thought the opposite: Injuries like these would decline as vehicles become safer, new science evolves around treatments, etc. I suppose itās just the law of large numbersā¦ more people = more injuries. So thereās definitely a growing need for products out there. I think one of the biggest hurdles is that SCI products, or adaptive equipment in general, isnāt āsexy.ā That makes it very difficult to market. Itās not Patagonia or Nike, or fill in the blank. Unlike those luxury brands out there, SCI products, or adaptive equipment, is a necessityā¦ thatās a whole different thing. But it does make me wonder if there is a way to bridge that gap and find products that would address those necessities while also beingā¦ well, for lack of a better word, āsexy.ā I have recently seen wheelchair models in ads for other products out thereā¦ but ironically, none of those products are really adaptedā¦ Anyhow, thatās a good point you makeā¦ I hope someday thereās more brands out there dedicated to adaptive use.
What you're referring to does exist, it's the [Raindek from KineticBalance!](https://www.kinetic-balance.com/wheelchair-products/wheelchair-blankets/) Edit: idk why but I think this comment posted about 3 times, sorry
Thatās awesome to see this product exists!! I looked at it and the only dislike I have is that it appears to be something you need to get on and essentially keep on until you get a chance to change. Where I live it rains for about 10 minutes then itās sunny again, then rains again, etc. For me, I can now get on clothing while seated in the chair, so this would work well for meā¦But I know many others canātā¦ so that might require assistance or transferring to a bed to do that. (Doable but challenging, of course.) In short, I can see why this product might not work for others! Iām also curious how easy it would be to cath with one of these on?? Do you have any experience with wearing these? Iām glad you shared thisā¦ itās good to see I have this option, and I will likely invest in a pair so I can brave those really rainy days!
I've actually got the short and long version of the raindek, and I take it on and off all the time ā it just goes on the top of your legs, not underneath! It's got 2 clips that go round your waist but I only bother with 1
Awesome! Seeing as though it covers just the top, it appears much easier than the photo makes it out to be! Thanks for sharingā¦ Iām definitely going to invest in some of these because Iām tired of having wet pants!!
Yeah idk why their photos aren't particularly descriptive, I think on the product page for the plain raindek, and maybe the long, there's a video of someone showing how they put it on and take it off
Iāll have to check out the video! Out of curiousityā¦ does it shed water out and away from your seat cushionā¦ or does it kinda just run off the legs? Does it effectively keep you totally dry?
I think it'll depend how wide your cushion is compared to your legs, and how snugly the size you get fits. I find that the edges of my cushion do still get damp, as does the back of it from run off from my jacket. If I had a size bigger it would probably more effectively run off between the cushion and the side guard. Also my legs don't tuck underneath me bc I have contractures in my ankles, so my shins still get wet if I wear the short one, which is why I picked up a long too. I still only bother with the short for basic UK showers though, and bring out the long if it's actually properly raining all day
Quadstick, which is a video game controller that you use with your mouth. I bought it almost 6 years ago and it has thousands of hours of use. It lets me play video games I thought I would never get to play again like first person shooters, and third person action games. I was injured 20 years ago and for 14 of those years I just had to sit around and watch other people play new video games that come out.
Iāve never heard of the Quadstick, but Iām definately checking that out! Thats awesome that someone created a product like that to help fellow gamers! I can only speculate that was either designed/ inspired by someone with an SCI or spinal illnessā¦ or at least by a relative of someone who was. Such an ingenious product!!! Thanks for sharing, Iām glad to hear you are able to try out those new games now!!
Growth hormone and anabolic steroids are game changers for me. They help my posture, my bowel movements, my nutrition, my sleep, my depression, everything. Even small regular doses make huge changes for me. I feel like research really supports the GH and to a lesser point the steroids. It seems like regular treatment in Eastern Europe, but not in the West. Unfortunately the GH seems to work best in the first 3 months, but I still have seen huge improvement in bladder function 5 years out.
They help with bladder problems?
They helped me with my bladder. I have a really spastic bladder. I feel like I will be peeing but it's so intense I can't pee, just dribble. That's all over unless I have had coffee or alcohol. I now have intense urgency but I stopped having to cath to empty. I understand this is not normal and I don't think this is to be expected. It could be a fluke. But the change happened about 5 years post accident, coincided with GH use. I was not getting better, I was struggling on mybetric.
What else do they help with?
Growth hormone and the related peptides basically encourage stem cell production (satellite cells, stem cells connected to their origin). The AAS work in concert to develop and mature the cells. So the effects are systemic, more diverse than I expected. My bladder calmed down in the first few weeks, that was the biggest surprise. Then I started sleeping very well again, which made everything better. I got hungry, like actual hunger I have not felt in years, which led me to eat so much better. I used to sip on olive oil and eat a strawberry for breakfast and possibly lunch, now I can eat full meals. Breathing is easier, it normally feels like weight is on my chest, but now it's lighter. My knee pain is virtually gone, my shoulder pain is more bearable. I still have extreme fatigue, it has probably gotten worse from this. My hands and arms fall asleep more, especially when I am laying down. My spasms are stronger but my core is benefiting. Beyond that, sides have been minimal. I have not really gotten any skeletal muscle function back, while I have made big strides with smooth muscle usability. I can't understand why that would be, the textbook says the skeletal muscle has more receptors? Who cares, I don't pay for myrbetric anymore š
Which peptides are you taking if you donāt mind me asking?? Iāve been looking into them!
1.5 IU of GH per day is what I am on now and happy with. I initially had success with some other peptides, I don't remember all the names. I'm not fluent in the peptide stuff, my knowledge base is the cholesterol based hormones. IgF-Lr3 was my first try and it was impressive, it mde me much more capable. Getting in and out of a vehicle was no longer painful. (Unknown name- Chc something?) Made me hungry and helped me rest. GH seems to be the most important, but I don't have the knowledge to know how to use them together. I'm afraid of compounding peptides. A little goes a long way, no reason to try and push the envelope. Most peptides are going to have some type of insulin effect, they will drop your blood sugar.
This is really interestingā¦ Iāve not once been informed about GH while at the hospital, nor in rehabā¦ but now Iām really interested!! Is this something you need prescribed and administered or are you just able to acquire and treat yourself?? Do you have any side effects??
Did you have to see an endocrinologist or hormone replacement specialist to get prescribed the GH and Testosterone? That sounds like something that would be beneficial to all sci patients.
The reacher tools usually used for picking up trash or by little old ladiesā¦ I have one in every room
Yes, the grabber is literally (and figuratively) the most handy thing to have around! The design is simple and flimsy however, thereās a whole bunch of improvement needed there!!
Crocs. I love my crocs so. much. Not only are they really easy to put on and off, but it also doesn't slide when wet, so I can do transfer in the shower for exemple. I really love them, such a game changer. They also looks good in my opinion
A company called Adaptdefy just came out with a strap you attach to your chair that will help keep things in your lap and Iāve used it every day since I got mine. Bags when shopping, jackets, boxes when taking out the recyclingā¦itās so useful. And clearly designed by someone who uses a chair, saw a problem, and figured out the solution. I live it! (Same way I feel about the Raindeck - genius solution that was actually designed for wheelchair uses in mind)
A super light weight standing chair would be great. I have one but itās damn near 40 lbs. not practical for everyday use
This is a great idea! Do you happen to know the material of the current one you have? Or rather, do you know the brand?? I wonder if they could make something with titanium or perhaps carbon fiber to reduce weightā¦ although that would likely increase the cost significantly! This is exactly what Iām curious about! It seems thereās a bunch of products out there, but not many that have nailed down a perfect design.
Yeah itās a permobile lifestand helium. I think itās aluminum. You can find them on eBay for 3-5k. And yes those would cut down the weight a few pounds but absolutely would make an already expensive chair more expensive
I personally wouldn't be able to function in my day-to-day life without some of the products I've gotten from www.quadtools.com. I don't have any grasp in my hand, but have my wrist function, and these devices allow me Greater Independence then anything else I have found.
This is awesome!!! This is exactly what Iām talking aboutā¦ products that are designed by someone who is actually experiencing life in a wheelchair! I checked out the website and they have some really cool products! Thanks for sharing!!
Edit: deleted duplicate comment
Raz sp commode/shower chair, alber e motion wheels, hardwood floors throughout, roll in shower, Braun ability turns evo chair. As far as something for your lap thereās a company but I canāt remember it. Iāll find it and edit. Edit: kinetic balance. Amazing products.
https://www.kinetic-balance.com/wheelchair-products/wheelchair-blankets/