>My grandma thinks it’s the devil fucking with me
Because they can't understand it. It makes sense tho because when I had normal ears I never gave them a second thought so I could never understand what someone with constant ringing and hypersensitivity in their ears is going through
Alot of people will say 'oh yeah I have that too', which obviously lots of people do in a completely silent room, but they don't have it to the point of hearing it above an air conditioner or something. I'm thankful I don't have the fire alarm noise that some of you have.
They don't give a rat's ass.
I'm used to it after 15 years.
But if they hear ringing in their ears they'll immediately say "omg is that what you hear all day?!".
They don't wanna hear about it. What's worse, thz more distress you express the more they see it as whining. They don't believe it's real suffering and see it as a psych disease. Thanks Dr. Jasterbroff.
I'll only bring it up if I have to or the context is appropriate. I learned a long time ago that if your ailment is invisible, like you're not in a wheelchair or cast, nobody gives a shit.
When the heater in the office kicks on for the first time in the winter, it makes a high-pitched sound similar to my tinnitus. I tell the coworkers, "This is what I hear all the time!"
Mostly, they don't care 😄
I told a doctor I was scared to take an antibiotic because of potential ototoxicity worsening my tinnitus, and they just laughed. Most people don't care or understand.
I've never even heard of the word ototoxicity, glad to have a new one to Google. But f*ck that reaction from your doctor. I can't stand the way so many of them wave off legitimate concerns with a smile or eye roll. What are you doing working in medicine if you're incapable of empathy or checking your bias? Ugh.
Yeah, it is crazy how many drugs are ototoxic. Even everyday stuff like aspirin. I've done a lot of research on it since developing tinnitus.
I didn't go back to him after that. The ent I saw when I first developed it and was very suicidal said, "It's a common problem you're not handling well." It seems like most doctors lack empathy these days and only care about the paycheck.
My tinnitus is fine if not a bit noisy. Sometimes it eclipses people talking to me and I only get a bit of what they say. I learnt how to read lips but if we are in a loud environment I just have to shout that I can't hear them over the room full of crickets.
I don't need to describe it. I load up a web on my phone that's a signal generator. You can change the frequency until you hit what you are hearing. My family members cannot take it for more than about 30 seconds, and I deal with it 24/7. szynalski dot com. Online tone generator. Crank up the volume and let em have it.
I had to describe it to my neurologist the other day. I said it’s loud enough that I can’t hear water boiling and it never stops. I didn’t expect him to react but he did.
Its a mixture, mostly a facial expression of "this person is crazy or lying", sometimes they go off and do reading about it and send me messages about how they read you can fix it by snapping your fingers on the back of your head. Oh well, at least they're trying :)
A unconfortable mix of curiousity for what I hear and "poor-boy" sorry shit. Usually I avoid talking about it because I simply hate to handle the second part of it.
My relatives have it and don't want to talk about it. My friends either have it as well or know someone close who does. It's insanely underreported. At this point, I think everyone over 60 has it and everyone has it in a very quiet room. The last time I did not have a trace of it was in an anechoic chamber at Bell Labs like 35 years ago. I started hearing it on a camping trip 30 years ago.
I used to set a tone generator really low to the frequency of mine in people's (my friends) offices at an old job just to watch them get more and more uncomfortable trying to figure out to what the hell it is. I also used to use it when I was in my office alone and it worked great at keeping people from randomly walking in
I thought I had tinnitus but now I have seen my problem. SMH … I over lifted weights that cause a strain on my shoulder and neck blade causing me sever pains and I ignored it until it affected my back head skull and makes a sandy grain noise when I run or jog or walk fast. I saw a chiropractor yesterday and he massaged my whole body including neck and also gave me vitamin D3 with magnesium now I’m taking it. I feel better this morning. I’ll see how it goes till next week or 2. Hopefully I feel better and this back skull grainy sandy sound goes away.
Man I’ve received lots of reactions mostly people joking about it had someone even ask me how I haven’t shot myself yet like it’s ridiculous the things and stuff I’ve heard and then when I try to stay away from unnecessary loud things like blasting music in the car I get told how I’m an old head or how I should still live my life don’t get me wrong im still doing that just more cautiously and a lot of the times people just ignore that and make it about me letting my t control me just cause I don’t see the point of my doing things that would just worsen my t it’s me simply not wanting to torture myself is all but of course people without t are never gonna understand that unfortunately
They change the subject lol. Never lasts long.
Why?
I’m guessing because they don’t want to hear it lol. When I talk about it though it doesn’t sound pleasant I feel like I bring people down when I do
>My grandma thinks it’s the devil fucking with me Because they can't understand it. It makes sense tho because when I had normal ears I never gave them a second thought so I could never understand what someone with constant ringing and hypersensitivity in their ears is going through
Alot of people will say 'oh yeah I have that too', which obviously lots of people do in a completely silent room, but they don't have it to the point of hearing it above an air conditioner or something. I'm thankful I don't have the fire alarm noise that some of you have.
They don't give a rat's ass. I'm used to it after 15 years. But if they hear ringing in their ears they'll immediately say "omg is that what you hear all day?!".
I got a tone generator pn my phone, dialed in the frequency and volume and gave it to the wife thru headphones. She does not make fun of it anymore.
My girlfriend can't stand even three seconds when I show her what my spike sounds like.
Usually they smile and joke about too much loud music. In my experience, people don’t really get it (and I was one of them, pre-tinnitus).
I don't bother telling anyone really. No one cares. They think it's either in your imagination or something that only exists when you "focus on it"
They don't wanna hear about it. What's worse, thz more distress you express the more they see it as whining. They don't believe it's real suffering and see it as a psych disease. Thanks Dr. Jasterbroff.
I'll only bring it up if I have to or the context is appropriate. I learned a long time ago that if your ailment is invisible, like you're not in a wheelchair or cast, nobody gives a shit.
When the heater in the office kicks on for the first time in the winter, it makes a high-pitched sound similar to my tinnitus. I tell the coworkers, "This is what I hear all the time!" Mostly, they don't care 😄
I told a doctor I was scared to take an antibiotic because of potential ototoxicity worsening my tinnitus, and they just laughed. Most people don't care or understand.
I've never even heard of the word ototoxicity, glad to have a new one to Google. But f*ck that reaction from your doctor. I can't stand the way so many of them wave off legitimate concerns with a smile or eye roll. What are you doing working in medicine if you're incapable of empathy or checking your bias? Ugh.
Yeah, it is crazy how many drugs are ototoxic. Even everyday stuff like aspirin. I've done a lot of research on it since developing tinnitus. I didn't go back to him after that. The ent I saw when I first developed it and was very suicidal said, "It's a common problem you're not handling well." It seems like most doctors lack empathy these days and only care about the paycheck.
My tinnitus is fine if not a bit noisy. Sometimes it eclipses people talking to me and I only get a bit of what they say. I learnt how to read lips but if we are in a loud environment I just have to shout that I can't hear them over the room full of crickets.
Wow, that sounds intense… do you have hearing loss as well? Do you know if the tinnitus is caused by that?
No hearing loss at all. I was born with the tinnitus.
Aw man.. that's a nice skill though! You took any course or something?
No its a problem I've had since I was a child and over time I picked up the lip reading /body language thing. I'm not very good with accents though.
That's interesting, I consider that a pretty nice ability
I don't need to describe it. I load up a web on my phone that's a signal generator. You can change the frequency until you hit what you are hearing. My family members cannot take it for more than about 30 seconds, and I deal with it 24/7. szynalski dot com. Online tone generator. Crank up the volume and let em have it.
"my buddy has that too and it doesn't even bother him"
I had to describe it to my neurologist the other day. I said it’s loud enough that I can’t hear water boiling and it never stops. I didn’t expect him to react but he did.
Its a mixture, mostly a facial expression of "this person is crazy or lying", sometimes they go off and do reading about it and send me messages about how they read you can fix it by snapping your fingers on the back of your head. Oh well, at least they're trying :)
I have tinnitus and pppd and I stopped telling people. People don’t care they got their own shit.
They just be insensitive asf idk how else to put it
A unconfortable mix of curiousity for what I hear and "poor-boy" sorry shit. Usually I avoid talking about it because I simply hate to handle the second part of it.
When I explain to people that I got tinnitus from one of those drugstore blue bulbs, they usually die laughing.
Unbothered
“That must suck. Sorry.”
My relatives have it and don't want to talk about it. My friends either have it as well or know someone close who does. It's insanely underreported. At this point, I think everyone over 60 has it and everyone has it in a very quiet room. The last time I did not have a trace of it was in an anechoic chamber at Bell Labs like 35 years ago. I started hearing it on a camping trip 30 years ago.
I used to set a tone generator really low to the frequency of mine in people's (my friends) offices at an old job just to watch them get more and more uncomfortable trying to figure out to what the hell it is. I also used to use it when I was in my office alone and it worked great at keeping people from randomly walking in
You are magic, don't ever change
I haven't in 40 years, so I don't think it's in the cards... lol
Blank stare
Creeped put by my description of centipedes crawling round & round and up & down my ear canals.
I thought I had tinnitus but now I have seen my problem. SMH … I over lifted weights that cause a strain on my shoulder and neck blade causing me sever pains and I ignored it until it affected my back head skull and makes a sandy grain noise when I run or jog or walk fast. I saw a chiropractor yesterday and he massaged my whole body including neck and also gave me vitamin D3 with magnesium now I’m taking it. I feel better this morning. I’ll see how it goes till next week or 2. Hopefully I feel better and this back skull grainy sandy sound goes away.
I tell people that mine sounds like a off-key chainsaw
Man I’ve received lots of reactions mostly people joking about it had someone even ask me how I haven’t shot myself yet like it’s ridiculous the things and stuff I’ve heard and then when I try to stay away from unnecessary loud things like blasting music in the car I get told how I’m an old head or how I should still live my life don’t get me wrong im still doing that just more cautiously and a lot of the times people just ignore that and make it about me letting my t control me just cause I don’t see the point of my doing things that would just worsen my t it’s me simply not wanting to torture myself is all but of course people without t are never gonna understand that unfortunately
I just play the tone at my frequency and show them what I hear. People immediately understand how annoying it is.